About Us

Hope is all that we have since the day our son, Ryan, was diagnosed with Duchenne muscular dystrophy.

“Making the decision to have a child is momentous. It is to decide forever to have your heart go walking around outside your body.” ~ Elizabeth Stone

Never would we have thought that this could happen to our beautiful son. However, that is what most people say when facing such a devastating possibility that soon becomes an evident reality. When Ryan was diagnosed with DMD, we were forced to face our worst nightmare- that our child had a fatal disorder for which there is no treatment or cure. Although our dreams for Ryan’s lifelong future were stolen by this news, HOPE was left in its place.

“Life is not about waiting for the storm to pass… It’s about learning to dance in the rain” ~ Unknown

Hope is the inspiration for Ryan’s Quest. We founded this organization within two short months of learning of Ryan’s diagnosis. We endured many sleepless nights and days where the hurt and tears felt like they would never cease. Until suddenly, we became enlightened. We knew that crying wouldn’t save Ryan. We needed to fight this disease. We learned how to focus the intensity of our emotions into saving Ryan and other boys affected by Duchenne by increasing awareness and funding for DMD research through Ryan’s Quest.

“You can really change the world if you care enough” ~ Unknown

Funding for Duchenne Muscular Dystrophy has allowed scientists to take great strides toward better treatments and possibilities of finding a cure for this disease. Significant advances in molecular medicine and gene therapy have been made. Major biotech and pharmaceutical companies are now investing in research that will bring DMD therapies from the lab into our homes. Advocates are also working hard to gain the support of the federal government so that funds may be allocated on research for a cure. However, more funding is needed in order to further these efforts and to save these boys. Within the DMD community, experts agree that we are on the brink of a scientific breakthrough. “It is no longer a matter of IF…it is a matter of WHEN”. However, time is working against Ryan and these boys each day. We must act now to save their lives. DMD research has attained a promising team of doctors, scientists and families who are committed to this cause…we just need the resources to succeed in finding a cure!

“In a moment of decision, the best thing you can do is the right thing to do. The worst thing you can do is nothing.” ~ Theodore Roosevelt