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University of Michigan spinoff Phrixus Pharmaceuticals has won an award from the National Institutes of Health (NIH) that will help the company advance to clinical trials for Carmeseal-MD, its developmental drug to treat cardiac and respiratory problems in patients with Duchenne muscular dystrophy. Read More

Newton, Mass. The clinical trial for HT-100 has begun!  HT-100 is an antifibrotic medication developed by Halo Therapeutics.
Recruiting has started at the first of 5 hospitals across the US.
Interested in participating? Read More
Boston, Massachusetts, Dec 5, 2012 - The Duchenne Alliance is pleased to announce new funding for Boston Children’s Hospital to support the work of internationally recognized geneticist Dr. Louis Kunkel and his research into the development of dystrophin independent therapies in Duchenne muscular dystrophy.
Read More
Newton, Mass.-May 22, 2012-Halo Therapeutics, LLC, a clinical-stage biopharmaceutical company developing novel therapeutics for rare fibrotic diseases, announced today that it has received financial support totaling $1.1 million from 12 not-for-profit foundations serving the muscular dystrophy patient community.
Read more
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Last week we hit up Congress for help.
  Now it's on to the White House!  

Accelerate approvals for safe and effective new drugs that can treat rare diseases.  Click here to read the letter with all 38 signatures that YOU helped secure.  Great job and thank you!!

Next up: We're going for the White House!  If we get 100,00 signatures on our petition by March 29, the White House will review it and respond. 
 That's 3,790 signatures a day for the rest of this month.  158 signatures per hour.  Two signatures every second.