Welcome to Ryan's Quest
ryans_quest_d001009.jpg
University of Michigan spinoff Phrixus Pharmaceuticals has won an award from the National Institutes of Health (NIH) that will help the company advance to clinical trials for Carmeseal-MD, its developmental drug to treat cardiac and respiratory problems in patients with Duchenne muscular dystrophy. Read More

Newton, Mass. The clinical trial for HT-100 has begun!  HT-100 is an antifibrotic medication developed by Halo Therapeutics.
Recruiting has started at the first of 5 hospitals across the US.
Interested in participating? Read More
Boston, Massachusetts, Dec 5, 2012 - The Duchenne Alliance is pleased to announce new funding for Boston Children’s Hospital to support the work of internationally recognized geneticist Dr. Louis Kunkel and his research into the development of dystrophin independent therapies in Duchenne muscular dystrophy.
Read More
Newton, Mass.-May 22, 2012-Halo Therapeutics, LLC, a clinical-stage biopharmaceutical company developing novel therapeutics for rare fibrotic diseases, announced today that it has received financial support totaling $1.1 million from 12 not-for-profit foundations serving the muscular dystrophy patient community.
Read more
Join Our Email List
Email:  
For Email Newsletters you can trust
logo.png ryans_quest_d001001.jpg
Home | Contact | Funded Projects | In The Press | How You Can Help | Mission | Upcoming Events | Past Events

About Us | Racing Events |Understand DMD | Corporate Sponsors | Advisory Board | Sponsorship Opportunities
2014 © Ryan’s Quest , all rights reserved
All Events
Racing Events
Golf Outing
Upcoming Events buttonmission.png
Advisory Board
Sponsorship Opportunties
buttonaboutus.png
Ryans Quest Merchandise
How You Can Help
buttonhowyoucanhelp.png buttonunderstand.png buttonfunded.png
ryans_quest_2014001003.png ryans_quest_2014001002.jpg
buttoncontact.png buttonmerch.png

Last week we hit up Congress for help.
  Now it's on to the White House!  

Accelerate approvals for safe and effective new drugs that can treat rare diseases.  Click here to read the letter with all 38 signatures that YOU helped secure.  Great job and thank you!!

Next up: We're going for the White House!  If we get 100,00 signatures on our petition by March 29, the White House will review it and respond. 
 
 That's 3,790 signatures a day for the rest of this month.  158 signatures per hour.  Two signatures every second.